Evaluation of a Novel Goals-of-Care Discussion Priming Tool (MyCare) in Inpatient General Internal Medicine Ward Settings: Feasibility, Acceptability, and Usability Study
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Summary
This summary is machine-generated.MyCare, an online tool, helps seriously ill patients clarify goals for person-centered care. It is feasible and acceptable, empowering patients to discuss their wishes with physicians and families.
Area Of Science
- Medical Informatics
- Patient-Centered Care
- Advance Care Planning
Background
- Goals-of-care conversations are crucial for person-centered care in seriously ill patients but are inconsistently implemented.
- Effective communication tools are needed to bridge the gap in consistent goals-of-care discussions.
Purpose Of The Study
- To develop and evaluate MyCare, an interactive online tool designed to prime goals-of-care discussions.
- To assess the feasibility, acceptability, and usability of MyCare for hospitalized, seriously ill patients.
Main Methods
- A mixed-methods study involving seriously ill patients on internal medicine wards at two hospitals.
- Participants completed the MyCare tool, followed by semistructured interviews and validated surveys (System Usability Scale, eHealth Literacy Scale).
- Physicians and family members also participated in interviews to assess advance care planning engagement and tool acceptability.
Main Results
- Patients took a median of 32 minutes to complete MyCare. The tool was found to help 76% of patients understand their priorities and 64% think about future care preferences.
- Advance care planning engagement scores showed a non-significant increase post-intervention (mean difference 0.09, P=.22).
- Patients found clarifying goals, identifying support persons, and having a conversation resource most useful; physicians valued patients' prioritized values and goals.
Conclusions
- MyCare demonstrates feasibility and acceptability for seriously ill patients, aiding in goals-of-care discussions.
- Future tools should be concise, prioritize shared physician-patient goals, and empower patients in advocating for their care preferences.
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