Co-Design of a Registry-Based Tailored Follow-up Service Intervention for People Living With Stroke: A Multiple...

Area of Science:

• Stroke Rehabilitation
• Health Services Research
• Patient-Reported Outcomes

Background:

• Post-stroke recovery often involves ongoing health challenges impacting quality of life.
• Patient-reported outcomes highlight the need for targeted support services after stroke.
• The Australian Stroke Clinical Registry collects valuable data on patient experiences.

Purpose of the Study:

• To co-design a registry-based, hospital-initiated follow-up service.
• The service aims to support individuals reporting major health challenges 90-180 days post-stroke.
• Involving stakeholders, including stroke survivors, in the design process.

Main Methods:

• Utilized iterative, consensus-based co-design methods from May 2022 to March 2023.
• Engaged diverse stakeholders: clinicians, researchers, and people with lived stroke experience.
• Employed surveys, consensus meetings, interviews, and pilot testing for intervention refinement.

Main Results:

• Scoping surveys indicated a need for broad inclusion criteria and carer involvement.
• Consensus meetings and Delphi surveys refined eligibility, clinical protocols, and training materials.
• Pilot testing provided feedback for further modifications, achieving high agreement on recommendations.

Conclusions:

• An iterative, consensus-driven co-design process successfully developed a novel registry-based follow-up service.
• The intervention targets stroke survivors with significant health challenges.
• A feasibility randomized controlled trial is planned as the next step.