"Inclusivity requires an active effort": building an inclusive and diverse space when engaging people with lived and living experience and caregivers in mental health and substance use health research
These videos have been matched automatically. Contact us if they are not relevant.
These videos have been matched automatically. Contact us if they are not relevant.
View abstract on PubMed
Summary
This summary is machine-generated.Engaging people with lived/living experience and caregivers (PLLEX-C) in research requires inclusive spaces. Key strategies include diverse recruitment, removing barriers, researcher training, and fostering safety for impactful mental health and substance use research.
Area Of Science
- Mental Health Research
- Substance Use Health Research
- Community Engagement
Background
- Engaging people with lived/living experience and caregivers (PLLEX-C) offers significant advantages in mental health and substance use research.
- Inclusive and diverse engagement settings are crucial for meaningful and impactful research outcomes.
- Recognizing the broad spectrum of human diversity is essential for effective research participation.
Purpose Of The Study
- To understand PLLEX-C perspectives on creating inclusive and diverse research environments.
- To identify best practices for engaging PLLEX-C in mental health and substance use health research.
Main Methods
- Qualitative descriptive study involving 20 PLLEX-C.
- Five focus group discussions were conducted, audio-recorded, and transcribed.
- Codebook thematic analysis utilized both deductive and inductive approaches, with a dedicated PLLEX-C Working Group involved throughout.
Main Results
- Four major themes emerged: acknowledging diversity in recruitment, removing barriers to participation, ensuring researcher training in inclusive engagement, and establishing safe and equitable spaces.
- Subthemes provided further detail and illustrative quotes for each major theme.
- Findings highlight the need for intentional efforts to improve diversity and inclusion in research engagement.
Conclusions
- Ensuring inclusive and diverse research settings demands continuous, active effort across all research stages.
- Implementing varied recruitment strategies and ongoing researcher training is vital for culturally sensitive, anti-discriminatory, and bias-free engagement.
- Prioritizing inclusive and diverse research teams enhances engagement, making it more meaningful, authentic, and empowering for all participants.
These videos have been matched automatically. Contact us if they are not relevant.
These videos have been matched automatically. Contact us if they are not relevant.
Related Concept Videos
Community-based interventions in mental health represent a paradigm shift from institution-centered care to treatments embedded within the fabric of local communities. By prioritizing inclusion and leveraging existing societal structures, this approach fosters a supportive environment conducive to addressing mental health challenges while promoting individual dignity and agency.
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
Rural Health Centers
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
Specialized care settings or centers are situated in convenient locations within the community and offer care to a specific group or population. They consist of daycare facilities, mental health facilities, rural health facilities, educational institutions, industries, shelters for the homeless, and rehabilitation facilities.
Daycare centers
They provide several functions. Some facilities care for healthy newborns and children whose parents work, while others are medically focused and care for...
Self-help support groups are voluntary, community-based organizations that provide a platform for individuals with shared concerns to exchange support, insights, and practical strategies for coping with life challenges. Typically led by group members or paraprofessionals, these groups form a cornerstone of mental health care, especially in reaching populations that are underserved by traditional healthcare systems.
Accessibility and Cost-Effectiveness
One of the primary strengths of self-help...
The factors influencing the health-illness continuum can be internal or external and may or may not be under conscious control. They are related to the following eight human dimensions, and each dimension is interrelated to one other.
• The Physical Dimension: Age, developmental stage, race, and gender fall within the physical dimension. The individual's health state and lifestyle choices are significantly influenced by these factors and include caring for the body to stay healthy...
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...