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Engaging migrants and immigrants in genetics research.
Mariana Valdez-Aguilar1, Jamie L Conklin2, Dawit Shawel Abebe3,4
1Department of Psychiatry, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Genetics research lacks migrant representation, hindering discovery and worsening health disparities. Community-centered, digitally enhanced, and culturally responsive strategies are crucial for equitable inclusion and generalizable genomic knowledge.
Area of Science:
- Genomics
- Population Genetics
- Health Disparities
Background:
- Human populations exhibit continuous migration, creating diverse genetic patterns.
- Current genetics research significantly underrepresents migrant and immigrant populations.
- This underrepresentation limits scientific understanding and widens health inequities.
Purpose of the Study:
- To examine challenges hindering equitable participation of migrants in genetics research.
- To propose actionable strategies for enhancing the inclusion of migrant populations.
- To advocate for community-centered approaches to improve genetic heterogeneity in research.
Main Methods:
- Comprehensive review of existing recruitment strategies for diverse populations.
- Analysis of barriers and facilitators for migrant participation in genetics studies.
- Development of recommendations for community-centered, digitally enhanced, and culturally responsive recruitment.
Main Results:
- Identified significant challenges in recruiting and retaining migrant populations in genetics research.
- Advocated for partnerships with community organizations, cultural spaces, and multilingual outreach.
- Highlighted the cost-effectiveness and scientific benefit of integrating migrants into research within host countries.
Conclusions:
- Equitable participation of migrants is essential for advancing genomic knowledge.
- Community-driven, culturally responsive, and digitally integrated strategies enhance research inclusivity.
- Integrating mobile populations improves genetic diversity, leading to more generalizable scientific findings.
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