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Published on: August 7, 2017
Exploring Alzheimer's Awareness: A Content Quality and Reliability Assessment
Pracruti J Iyer1, Akanksha Soni2, Naima Waheed3
1Medicine, BKL Walawalkar Rural Medical College, Chiplun, Maharashtra, Mumbai, IND.
Instagram content on Alzheimer's disease (AD) is often inaccurate and unreliable. Healthcare professionals and researchers provide higher quality information, highlighting a need for evidence-based content to improve public understanding of AD.
Area of Science:
- Neuroscience and Public Health
- Digital Health Communication
Background:
- Alzheimer's disease (AD) is a progressive neurodegenerative disorder with significant public health implications.
- Social media platforms like Instagram are increasingly used for health communication, but content quality and reliability vary.
- Evaluating the accuracy and educational value of AD information on Instagram is crucial for public health.
Purpose of the Study:
- To systematically evaluate the nature, accuracy, reliability, and educational quality of Alzheimer's disease (AD)-related content on Instagram.
- To determine if Instagram content is evidence-based, appropriately sourced, and suitable for public health education.
- To compare the quality and reliability of AD content based on accuracy and uploader category.
Main Methods:
- A 20-day cross-sectional observational study in January 2025 analyzed 288 Instagram posts from six popular AD-related hashtags.
- Posts were assessed for type, uploader category, content focus, factual accuracy, Global Quality Score (GQS), and Reliability Score.
- Statistical comparisons were made between groups based on content accuracy and quality.
Main Results:
- Of 288 analyzed posts, 162 (56.25%) were images and 126 (43.75%) were videos.
- Doctors and researchers were the most common uploaders (30.94% and 28.47%, respectively).
- Only 51.9% of posts in Group A were factually accurate, compared to 38.59% in Group B (P < 0.000001), with higher GQS and Reliability Scores for accurate content.
Conclusions:
- Instagram disseminates substantial Alzheimer's-related information, but overall content quality and reliability are suboptimal, with less than half of posts being factually accurate.
- Content from healthcare professionals and researchers is generally more credible than that from patients or non-medical users.
- There is a pressing need to promote evidence-based, high-quality content on Instagram to improve public understanding and support for Alzheimer's disease.
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