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Ethical Standards I01:25

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Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
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How Could Legal Standards Promote Equitable Access to EHRs?

Jessica L Roberts1

  • 1Professor of law, artificial intelligence, machine learning, and data science at the Emory University School of Law in Atlanta, Georgia.

AMA Journal of Ethics
|November 3, 2025
PubMed
Summary
This summary is machine-generated.

Accessible electronic health records (EHRs) are crucial for equitable healthcare. However, current EHR systems present accessibility challenges for individuals with disabilities, necessitating clearer obligations for developers and clinicians.

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Area of Science:

  • Health Informatics
  • Disability Studies
  • Bioethics

Background:

  • Electronic Health Records (EHRs) offer significant potential for patient empowerment and data accessibility.
  • Current EHR systems often create barriers for individuals with diverse disabilities.
  • This inaccessibility exacerbates existing health inequities.

Purpose of the Study:

  • To highlight the ethical and legal implications of inaccessible EHRs.
  • To argue for enhanced legal and ethical obligations concerning EHR accessibility.
  • To identify the need for clearer responsibilities for EHR developers and healthcare providers.

Main Methods:

  • Literature review of federal laws and regulations pertaining to EHR accessibility.
  • Analysis of ethical frameworks regarding equitable access to health information.
  • Argumentative synthesis of current accessibility shortcomings and proposed solutions.

Main Results:

  • Existing federal protections for accessible EHRs are insufficient.
  • Significant gaps exist in ensuring equitable EHR access for people with disabilities.
  • Current legal and ethical frameworks do not adequately address EHR accessibility challenges.

Conclusions:

  • More clearly defined obligations are essential for EHR developers to ensure accessibility.
  • Clinicians must be held to higher standards to guarantee accessible EHR use for all patients.
  • Addressing EHR inaccessibility is a critical step towards achieving health equity.