Parents' subjective experience of the parenting process in paediatric oncology during hospitalisation at home
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View abstract on PubMed
Summary
This summary is machine-generated.Parents caring for children with cancer at home (HaH) experience a dynamic parenting process. This involves balancing caregiving, maintaining presence, and managing guilt, requiring constant adaptation and new skills.
Area Of Science
- Pediatric Oncology
- Family Caregiving
- Home Healthcare
Background
- Hospitalisation at home (HaH) is an increasing alternative for pediatric cancer care.
- Parents face role redefinition balancing family life and medical demands.
Purpose Of The Study
- To describe the parenting process for parents of children with cancer receiving home hospitalisation care.
Main Methods
- Semi-structured interviews with 27 parents of children with cancer.
- Reflexive thematic analysis of transcribed interviews.
Main Results
- Parenting is structured around forms of parenting, continuous parental presence, and guilt.
- The process is a dynamic system with constant interplay between these dimensions.
Conclusions
- Parenting during home hospitalisation is dynamic, adaptive, and emotionally burdensome.
- Parents must continually adapt and acquire new skills to meet their child's needs.
- Understanding this complexity can support healthcare professionals assisting these families.
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