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Published on: September 19, 2019
Parents' subjective experience of the parenting process in paediatric oncology during hospitalisation at home
Voskan Kirakosyan1, Matthieu Plichart2, Fatima Laradji2
1CLIPSYD - A2P, Paris Nanterre University, Avenue de la République, 92001 Nanterre Cedex, France.
Insights
Parents caring for children with cancer at home (HaH) experience a dynamic parenting process. This involves balancing caregiving, maintaining presence, and managing guilt, requiring constant adaptation and new skills.
Area of Science:
- Pediatric Oncology
- Family Caregiving
- Home Healthcare
Background:
- Hospitalisation at home (HaH) is an increasing alternative for pediatric cancer care.
- Parents face role redefinition balancing family life and medical demands.
Purpose of the Study:
- To describe the parenting process for parents of children with cancer receiving home hospitalisation care.
Main Methods:
- Semi-structured interviews with 27 parents of children with cancer.
- Reflexive thematic analysis of transcribed interviews.
Main Results:
- Parenting is structured around forms of parenting, continuous parental presence, and guilt.
- The process is a dynamic system with constant interplay between these dimensions.
Conclusions:
- Parenting during home hospitalisation is dynamic, adaptive, and emotionally burdensome.
- Parents must continually adapt and acquire new skills to meet their child's needs.
- Understanding this complexity can support healthcare professionals assisting these families.
Purpose:
Around 2260 new cases of cancer are diagnosed annually in children in France. Hospitalisation at home (HaH) represents a growing alternative to the more conventional hospital stay, since it enables children with cancer to receive medical care in the home while remaining in a familiar environment. Parents of children can face a significant redefinition of their parenting roles, caught between the continuity of family life and the demands of medical care. The aim of this study was to describe the parenting process from the perspective of parents of children with cancer hospitalised at home.
Method:
Semi-structured interviews were conducted individually with parents (n = 27) of children with cancer in two French structures. The interviews were transcribed verbatim, and reflexive thematic analysis was applied.
Results:
Our findings highlight a parenting process structured around three main dimensions, which functions as a dynamic system characterised by a constant interplay between (1) forms of parenting, (2) a continuous parental presence that remains stable over time and (3) the guilt that fuels the process.
Conclusions:
Parenting process during HaH is dynamic, adaptive and marked by a high emotional and mental burden. In this way, parents must constantly reinvent parenting by integrating new skills to respond to the needs of their children with cancer. Recognising this complexity may aid professionals to the issues confronted by parents caring for children with cancer at home setting.
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