Perspectives on self-management of noise intrusion in daily living with hyperacusis

Previous studies on noise intolerance have recommended further research into the lived experience of hyperacusis in order to better understand the specific needs and strategies used by those affected. We conducted a study with an inductive approach in which individuals with hyperacusis were willing to share their experiences.

To build a theoretical framework, based on the perspective of individuals with hyperacusis, that incorporates the behavior patterns underlying their participation in social contexts.

The study population (N=29) included 12 females and 17 males (mean age 45 years) who had severe hyperacusis (mean HQ score 31). Open-ended interviews were conducted, and classic Grounded Theory (GT) was applied for the analysis of collected data.

Participants' main concern was related to intrusive feelings of being trapped by noise. In order to overcome noise intrusion, they expressed the need to alternate between a) moving away from challenging sound environments and b) setting clear goals in social participation. Participants' ability to take initiative in the auditory scene, and to put aversive bodily sensations into perspective, contributed to their ability to stay in noisy environments. Furthermore, access to restorative environments (e.g. walking in the forest or by the sea) helped them replenish the ability to remain attentive in noisy environments.

Considering the needs expressed by patients with hyperacusis contributes to clinical management by identifying the adaptive behaviors underlying social participation. Furthermore, hypotheses about barriers and facilitators to sound exposure can be tested in future research.