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Co-Designing a Peer Support Program for NICU Parents Using a Participatory Action Research Approach.

A Pascual1,2, J M Wielenga1, K Ruhe1

  • 1Department of Neonatology, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.

Acta Paediatrica (Oslo, Norway : 1992)
|November 6, 2025
PubMed
Summary
This summary is machine-generated.

This study co-designed a parental peer support program for neonatal intensive care units (NICUs) with parents and healthcare professionals. The program offers emotional support, practical advice, and tailored resources for NICU families.

Keywords:
NICUparental supportparent‐to‐parent supportpeer support

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Area of Science:

  • Neonatal Intensive Care Unit (NICU) care
  • Parental support programs
  • Healthcare system co-design

Background:

  • Neonatal intensive care units (NICUs) present unique challenges for parents.
  • Parental well-being is crucial for infant outcomes in the NICU.
  • Existing support structures may not fully address the needs of NICU parents.

Purpose of the Study:

  • To co-design a sustainable parental peer-to-peer support program within a level IV NICU.
  • To involve all relevant stakeholders, including veteran parents and healthcare professionals (HCPs), in the program's development.
  • To ensure the program is appropriate and meets the needs of NICU families.

Main Methods:

  • Participatory action research (PAR) involving seven veteran parents and 11 NICU HCPs.
  • Seven co-design sessions focused on peer support content, organization, and training.
  • Thematic analysis of audio recordings and written materials using inductive and deductive approaches.

Main Results:

  • Veteran parents stressed the value of peer support for emotional well-being, empowerment, and practical guidance.
  • HCPs identified organizational opportunities aligned with available resources.
  • Participants advocated for diverse, adaptable peer support forms and clear role delineation between peers and HCPs.
  • Training and supervision were highlighted as essential.

Conclusions:

  • A framework for a parental peer support program was successfully developed through collaboration.
  • The findings offer actionable recommendations for implementing similar programs in NICU settings.
  • This collaborative approach ensures program relevance and sustainability.