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"I Had a Needle, But This Program Gave Me the Thread": A Caregiver Screening and Response Protocol
Rinat Nissim1, Shenhab Zaig2, Paige Chu2
1Department of Supportive Care (R.N., S.Z., P.C., B.H.), Princess Margaret Cancer Centre, Toronto, Canada; Department of Psychiatry (R.N), University of Toronto, Toronto, Canada.
A nurse-led protocol effectively screened and supported family caregivers of advanced cancer patients, improving their satisfaction with psychosocial care. This approach offers timely, tailored assistance for caregivers facing significant burdens.
Area of Science:
- Palliative Care
- Oncology Nursing
- Caregiver Support
Background:
- Family caregivers of advanced cancer patients experience substantial psychological and practical challenges.
- Existing support systems for these caregivers are often inadequate.
Purpose of the Study:
- To develop and pilot a nurse-led screening and response protocol.
- To address unmet support needs of family caregivers in an outpatient palliative care clinic (OPCC).
Main Methods:
- Recruited English-speaking adult family caregivers of patients in a Canadian tertiary cancer center's OPCC.
- Implemented repeated needs screenings and tailored nurse consultations.
- Assessed satisfaction with care and conducted qualitative interviews.
Main Results:
- All 31 enrolled caregivers completed at least one screening and consultation.
- A statistically significant improvement in satisfaction with psychosocial care was observed.
- Caregivers valued independent support, acknowledgment of their needs, and assistance with end-of-life planning.
Conclusions:
- Routine screening and response protocols can facilitate timely, tailored support for family caregivers.
- Early implementation may improve caregiver recruitment and engagement in support programs.
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