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Caregiver Experiences With Infant PLANA Therapy for Cleft Lip and/or Palate: A Cross-Sectional Survey Study.

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Applying Trauma Informed Care in Multidisciplinary Cleft Practices: Defining Pediatric Cleft Trauma and Providing

Matteo Laspro1, Allison L Diaz2, Jessica Aceste2

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Summary

Cleft lip and/or palate (CL/P) can negatively impact psychosocial well-being, increasing risks for mood disorders and trauma. Trauma-informed care is crucial for children with CL/P, especially given limited access to specialized cleft centers.

Keywords:
cleft lip and palateethics/health policiesmental health supportpsychosocial adjustment

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Area of Science:

  • Pediatric Health
  • Psychosocial Outcomes
  • Trauma-Informed Care

Background:

  • Cleft lip and/or palate (CL/P) is a lifelong condition necessitating comprehensive, multidisciplinary care.
  • CL/P is associated with significant psychosocial challenges, including low self-esteem, bullying, social isolation, and rejection.
  • Patients with CL/P face increased vulnerability to mood disorders and trauma stemming from their facial differences.

Purpose of the Study:

  • To highlight the psychosocial impacts of CL/P on children.
  • To emphasize the importance of evaluating for trauma symptoms in children with CL/P.
  • To advocate for the integration of trauma-informed care within the healthcare system for CL/P patients.

Main Methods:

  • Review of existing literature on psychosocial outcomes in CL/P.
  • Analysis of the psychological effects of facial differences.
  • Discussion of care models for children with CL/P.

Main Results:

  • Children with CL/P experience adverse psychosocial outcomes.
  • Facial differences can predispose individuals to mood disorders and trauma.
  • Limited access to specialized cleft care centers exacerbates challenges.

Conclusions:

  • Early evaluation for trauma symptoms is essential for children with CL/P.
  • Implementing trauma-informed care can significantly improve psychosocial well-being.
  • Addressing psychosocial needs is critical for lifelong CL/P management.