Digital Health Tool for Preventing Blindness From Diabetic Retinopathy: Protocol for a Qualitative Study

Area of Science:

• Public Health
• Digital Health
• Ophthalmology

Background:

• Diabetic retinopathy (DR) is a leading cause of preventable blindness.
• Disparities in DR screening and outcomes exist for Black, Latine, and low-income populations.
• Community engagement is crucial for addressing health inequities.

Purpose of the Study:

• To identify barriers and facilitators to DR screening.
• To co-design a community-responsive digital health tool for DR education and screening.
• To improve health outcomes for high-risk populations.

Main Methods:

• Conducted focus groups with 19 adults diagnosed with diabetes in New Haven, CT.
• Utilized rapid qualitative analysis and affinity mapping to identify themes and features.
• Incorporated community feedback to inform digital tool development.

Main Results:

• Identified desired digital tool attributes including customization, mental health support, peer support, and diabetes education.
• Over 94% of participants had access to smart devices.
• Key themes included barriers to blood sugar control and dietary guidance.

Conclusions:

• A community-led approach is essential for developing effective digital health tools.
• Insights gained will guide the creation of a DR prevention tool tailored to community needs.
• Iterative design with community feedback will optimize tool usability and impact.