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Related Experiment Video

Updated: Jan 11, 2026

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
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Parent Experience in Neonatal Hospitalization in Poland: A Cross-Sectional Pilot Study Using NSS-8 and PEC

Oskar Komisarek1, Maja Matthews-Kozanecka2, Katarzyna Wiecheć3

  • 1Department of Otolaryngology, Phoniatrics and Audiology, Faculty of Medicine, Collegium Medicum, Nicolaus Copernicus University in Toruń, 87-100 Toruń, Poland.

Journal of Clinical Medicine
|November 13, 2025
PubMed
Summary

Parents reported positive neonatal care and communication, but experienced significant emotional burden and needed better post-discharge information. Findings suggest improving discharge communication and support for parents in neonatal units.

Keywords:
NSS-8PECPREMsPolandcaregiver stressclinical communicationdischarge communication bundlefamily-centred careneonatal intensive careparent-reported experiencepilot studypost-discharge follow-upquality improvement

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Area of Science:

  • Neonatal care
  • Family-centered care
  • Patient experience

Background:

  • Parent-reported experience is crucial for family-centered care in Polish neonatal units but is under-measured.
  • A pilot study aimed to assess parent experience and identify areas for improvement in neonatal care.
  • The study utilized a brief questionnaire based on the Neonatal Satisfaction Survey (NSS-8) and communication constructs from the Parents' Experiences of Communication in Neonatal Care (PEC).

Purpose of the Study:

  • To pilot a brief parent-experience questionnaire in a Polish tertiary neonatal center.
  • To describe the in-hospital experience of parents with hospitalized neonates.
  • To identify actionable targets for improving neonatal care and communication.

Main Methods:

  • An observational, cross-sectional pilot study was conducted at a Polish tertiary center from September to November 2021.
  • Parents of hospitalized neonates completed a 21-item survey assessing various aspects of their experience.
  • Descriptive analyses were performed using item-wise denominators.

Main Results:

  • Forty-six parents participated, rating educational materials highly (parental guide 9.8/10, brochure readability 10/10).
  • Perceptions of care and communication were favorable (overall care 4.47/5, physician concern 4.62/5).
  • Parents reported moderate stress (3.00/5) and a need for post-discharge support, with 37.0% seeking specialist consultations.

Conclusions:

  • Parents reported highly positive care and communication but also a persistent emotional burden and significant post-discharge information needs.
  • The findings support integrating a comprehensive experience framework with a focused communication module.
  • Standardizing discharge communication, including a "bridging" contact, is recommended for improving parental support.