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Can anonymisation become disempowering? Rethinking ethics for low-risk global health research
Mandatory anonymisation in research can disempower participants seeking recognition. Flexible ethical guidelines and tiered consent empower informed choices about participant identification when risks are minimal.
Area of Science:
- Global Health
- Research Ethics
Background:
- Anonymisation is standard practice in research for protection.
- Blanket anonymisation may hinder participants seeking recognition and credibility.
Purpose of the Study:
- To examine the impact of mandatory anonymisation on research participants.
- To advocate for flexible ethical guidelines that respect participant preferences for recognition.
Main Methods:
- Qualitative fieldwork in India examining task shifting and sharing.
- Analysis through the lens of epistemic injustice.
Main Results:
- Non-profit leaders questioned mandatory anonymity, seeing research participation as a chance for recognition and impact.
- Mandatory anonymisation reflects institutional assumptions, potentially perpetuating invisibility of knowledge-producing organisations.
Conclusions:
- Flexible ethical guidelines and tiered consent processes are needed.
- Empowering participants with informed choices on recognition, especially when risks are minimal, is crucial.
- Context-dependent frameworks can ensure proportionate protection and respect participant preferences.
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