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Related Concept Videos

Role of Communication in the Nursing Process I: Assessment and Diagnosis01:25

Role of Communication in the Nursing Process I: Assessment and Diagnosis

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The nursing process uses scientific reasoning, problem-solving, and critical thinking to guide nurses in providing patients with appropriate care. This process is a systematic approach to recognize, avoid, and treat current or potential health issues while promoting the patient's well-being.
The nursing process considers the patient's emotional and physical well-being. The process can be repeated or stopped at any point if judged essential. Assessment is the first step in the nursing...
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Documentation of Nursing Diagnosis01:10

Documentation of Nursing Diagnosis

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The nurse documents nursing diagnoses and enters them into the patient record. The identified patient's nursing diagnosis is either written out with a plan of care or entered into the electronic health record.
In some settings, data-driven computerized decision support systems are in place, allowing for more accurate nursing diagnoses. The database within one of these systems includes diagnostic labels defining characteristics, activities, and indicators for nursing. A nurse enters...
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Role of Communication in the Nursing Process II: Planning and Implementation01:25

Role of Communication in the Nursing Process II: Planning and Implementation

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Several factors are considered while creating a patient's care plan. Motivation is a factor in improving communication, and patients often require encouragement to try different approaches involving significant change. It is essential to involve the patient and family in decisions about the plan of care to determine whether the suggested methods are acceptable. Consider meeting critical comfort and safety needs before introducing new communication methods and techniques. Allow adequate time...
2.5K
Nursing Process for Patient and Caregiver Teaching I: Assessment and Diagnosis01:24

Nursing Process for Patient and Caregiver Teaching I: Assessment and Diagnosis

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The nursing process provides a clinical decision-making framework for patients and families to establish and implement a personalized care plan. Since part of the nurse's duties is to teach patients, the steps of the nursing process are the most effective way to approach instruction. The nursing process and the teaching-learning process are inextricably linked.
It is critical to determine the patient's learning needs during the assessment. Determination of learning needs compounds data...
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Communication01:28

Communication

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Sharing information, concepts, and emotions to foster mutual understanding is communication. The sender, recipient, and transaction must be considered in this manner. The sender is the person who shares the message, the recipient is the person who receives and understands the message, and the transaction is the method used to deliver the message and the variables that affect the communication's context and surroundings. The nurse-client connection is built on therapeutic communication.
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Therapeutic Communication01:30

Therapeutic Communication

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Communication is a lifelong learning process. Through therapeutic communication, nurses can collect relevant assessment data, provide education and counseling, and interact during nursing interventions. Sending and receiving messages occur through verbal and nonverbal communication techniques and can happen separately or simultaneously.
Verbal communication depends on language or a prescribed way of using words so that people can share information effectively. The critical aspects of verbal...
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  1. Home
  3. Research Domains
  5. Biomedical And Clinical Sciences
  7. Paediatrics
  9. Infant And Child Health
  11. "nobody Listened To Us For Years": Parents' Experiences Of Provider Communication In The Diagnostic Odyssey.
  1. Home
  3. Research Domains
  5. Biomedical And Clinical Sciences
  7. Paediatrics
  9. Infant And Child Health
  11. "nobody Listened To Us For Years": Parents' Experiences Of Provider Communication In The Diagnostic Odyssey.

Related Experiment Video

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

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"Nobody listened to us for years": Parents' experiences of provider communication in the diagnostic odyssey.

Michelle M Nguyen1, Sevil Mahfoozi1, Devon Bonner2

  • 1Stanford Center for Biomedical Ethics, Stanford University, Stanford, CA 94305, USA.

Molecular Genetics and Metabolism
|November 13, 2025

View abstract on PubMed

Summary
This summary is machine-generated.

Effective parent-provider communication is crucial for diagnosing rare diseases. Challenges in communication can hinder diagnosis, but interventions may improve outcomes for undiagnosed children.

Keywords:
Care coordinationCommunicationGenetics and genomicsRare diseases

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Area of Science:

  • Medical Genetics
  • Rare Diseases
  • Healthcare Communication

Background:

  • Rare disease diagnosis faces challenges like limited provider awareness and genetic testing access barriers.
  • The impact of parent-provider communication dynamics on diagnostic access and care quality for undiagnosed children is less understood.

Purpose of the Study:

  • To characterize communication dynamics between parents of undiagnosed children and healthcare providers during the diagnostic odyssey.
  • To identify how these interactions influence the diagnostic journey and care.

Main Methods:

  • Recruited parents (n=36) of undiagnosed children undergoing genomic sequencing from clinical, research, and online settings.
  • Conducted up to three in-depth interviews per participant.
  • Analyzed interview data inductively to identify key communication themes.

Main Results:

  • Parents identified three key communication dimensions: provider availability/responsiveness, trust/validation, and inter-provider communication.
  • Parents reported both effective and challenging communication experiences.
  • Parents employed strategies like advocacy or resignation in response to communication challenges.

Conclusions:

  • Parent-provider communication significantly impacts diagnosis and care access for undiagnosed children.
  • Communication challenges are not universal, indicating potential for targeted interventions.
  • Further research is needed to develop and evaluate interventions improving parent-provider interactions and their impact on diagnostic timelines and health outcomes.