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Published on: February 2, 2024
Participation, environment, and quality of life in children with cerebral palsy and physical disabilities
Nava Gelkop1, Batya Engel-Yeger1
1Department of Occupational Therapy, Faculty of Social Welfare & Health Sciences, University of Haifa, Haifa, Israel.
Insights
Children with cerebral palsy and physical disability (CP/PD) have lower participation and quality of life (QoL). Community support significantly improves QoL for these children, highlighting the need for community engagement in rehabilitation.
Area of Science:
- Pediatric Rehabilitation
- Child Development
- Disability Studies
Background:
- Children with cerebral palsy and physical disability (CP/PD) often experience challenges in participation and quality of life (QoL).
- Environmental factors play a significant role in the daily lives and well-being of children with disabilities.
Purpose of the Study:
- To compare participation, environmental factors, and QoL between children with CP/PD and typically developing children.
- To examine the relationships between these factors in both groups.
Main Methods:
- A cross-sectional study involving 59 children (6-12 years), with 30 diagnosed with CP/PD and 29 typically developing.
- Parents completed questionnaires assessing participation, environment, and QoL; functional classifications were recorded for the CP/PD group.
Main Results:
- Children with CP/PD showed significantly lower participation and QoL compared to typically developing peers.
- Higher gross motor function in the CP/PD group correlated with increased participation in home activities.
- Community-setting support was a significant predictor of QoL and mediated the relationship between disability level and QoL.
Conclusions:
- Community-based support is vital for improving the QoL of children with CP/PD.
- Rehabilitation strategies should prioritize community engagement to enhance participation and overall well-being.
Aim:
To compare and examine relationships between participation, environmental factors, and quality of life (QoL) in children with cerebral palsy and physical disability (CP/PD) and typically developing children.
Method:
Participants were 59 children (6-12 years; 31 females): 30 with CP/PD (mean age 8 years 7 months, standard deviation 1 year 6 months) and 29 with typical development (mean age 8 years 2 months, standard deviation 1 year 6 months). Parents completed the Participation and Environment Measure for Children and Youth to assess participation, the Pediatric Quality of Life Inventory to assess QoL, and a socio-demographic questionnaire. Gross motor function and additional functional classifications were recorded for the CP/PD group.
Results:
Involvement in activities, frequency of participation, and QoL were significantly lower in the CP/PD group than in the typically developing group. The gross motor function levels of the CP/PD group positively correlated with their participation in home activities levels. Community-setting support significantly predicted QoL and mediated (β = 0.66, p < 0.001) between disability level and QoL.
Interpretation:
Community-setting support is crucial for enhancing QoL for children with CP/PD. Rehabilitation should emphasize community engagement to improve the children's participation and well-being.
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