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Quality of life in children with chronic pancreatitis: An overlooked challenge
Ankit Agrawal1, Arghya Samanta2
1Department of Pediatric Gastroenterology, Post Graduate Institute of Child Health, Noida 201303, Uttar Pradesh, India.
Insights
Pediatric chronic pancreatitis (CP) significantly impacts children's quality of life (QOL). Addressing pain, nutrition, and mental well-being through multidisciplinary care is crucial for improving QOL in these young patients.
Area of Science:
- Gastroenterology
- Pediatrics
- Quality of Life Research
Background:
- Chronic pancreatitis (CP) is increasingly diagnosed in children, not just adults.
- CP is a progressive inflammatory pancreatic disease leading to exocrine and endocrine insufficiency.
- Pediatric CP's impact on quality of life (QOL) is under-addressed in clinical practice.
Purpose of the Study:
- To review the physical, emotional, educational, and social challenges faced by children with CP and their families.
- To highlight the unmet need for QOL assessment in pediatric CP management.
- To advocate for a comprehensive approach to pediatric CP care.
Main Methods:
- Literature review focusing on pediatric chronic pancreatitis.
- Analysis of studies addressing QOL in pediatric CP.
- Synthesis of challenges related to pain, hospitalizations, and pancreatic insufficiency.
Main Results:
- Pain-related disability and frequent hospitalizations significantly impair daily functioning.
- Exocrine and endocrine insufficiency pose long-term health risks.
- Children with CP experience substantial physical, emotional, educational, and social burdens.
Conclusions:
- Improving QOL in pediatric CP necessitates a multidisciplinary approach.
- Effective pain management is essential for daily functioning.
- Nutritional optimization and psychological support are vital components of holistic care for children with CP.
Abstract:
Chronic pancreatitis (CP) is no longer considered a disease of adults alone; it is increasingly being recognized in children as well. It is a chronic inflammatory condition of the pancreas that can lead to exocrine and endocrine insufficiency over time. The clinical aspects and medical management of pediatric CP are often discussed; however, its impact on the quality of life (QOL) remains largely unaddressed in routine clinical care. The review focus on physical, emotional, educational, and social challenges experienced by children with CP and their families. Pain-related disability, frequent hospitalizations, and the risk of developing exocrine and endocrine insufficiency significantly affect daily functioning and mental well-being. Therefore, improving QOL in children with CP requires a multidisciplinary care strategy, including effective pain management, nutritional optimization, and psychological support.
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