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Exploring Patient Preference Information in Clinical Research and Decision Models: An Investigative Survey
Martina Di Blasio1, Zahra Bami1, Matteo Bracco1
1Center for Biostatistics, Epidemiology, and Public Health, Department of Clinical and Biological Sciences, University of Turin, Turin, Italy.
Patient preferences are crucial in healthcare, yet their integration is unclear. Experts see growing recognition and willingness to prioritize patient preference information, despite existing challenges.
Area of Science:
- Healthcare research
- Health technology assessment
- Patient-centered care
Background:
- Patient preferences significantly influence care pathways, quality assessment, and healthcare technology advancement.
- The current extent of patient preference information utilization in healthcare remains largely undefined.
Purpose of the Study:
- To investigate the current use and future integration of patient preference information among healthcare experts.
- To identify challenges and opportunities associated with incorporating patient preferences into healthcare practices.
Main Methods:
- An online survey was administered to 46 experts.
- Respondents represented clinical research, pharmaceutical industry, regulatory affairs, and health technology assessment sectors.
Main Results:
- Approximately 30% of surveyed experts currently use patient preference information routinely.
- A significant majority (90%) expressed willingness to prioritize the integration of patient preference information in the future.
- Key challenges identified include limited patient engagement, data reliability issues, and resistance to changing traditional practices.
Conclusions:
- There is a growing acknowledgment of the benefits of integrating patient preference information in healthcare.
- Substantial efforts and investments are required to overcome barriers and facilitate wider adoption of patient preference information.
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