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Exploring Patient Preference Information in Clinical Research and Decision Models: An Investigative Survey
Martina Di Blasio1, Zahra Bami1, Matteo Bracco1
1Center for Biostatistics, Epidemiology, and Public Health, Department of Clinical and Biological Sciences, University of Turin, Turin, Italy.
Purpose:
Patient preferences are playing an increasingly pivotal role in defining care pathways, assessing care quality, and advancing healthcare technologies, but their current use remains unclear.
Patients And Methods:
We conducted an online survey collecting data from 46 experts in clinical research, pharmaceutical industry, regulatory affairs, and health technology assessment.
Results:
About 30% of our respondents are using patient preference information routinely, and 90% are willing to prioritize its integration in the future. This is despite challenges such as limited patient engagement, difficulty in obtaining reliable data, and reluctance to deviate from traditional practices.
Conclusion:
Here, we show a growing recognition of the potential benefits of integrating patient preference information, and that concerted efforts and investments are necessary to support wider adoption.
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