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  1. Home
  3. Guideline Organizations' Guidance Documents Paper 4: Interest-holder Engagement.
  1. Home
  3. Guideline Organizations' Guidance Documents Paper 4: Interest-holder Engagement.

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Guideline organizations' guidance documents paper 4: interest-holder engagement.

Joanne Khabsa1, Vanessa Helou2, Hussein A Noureldine3

  • 1Clinical Research Institute, American University of Beirut, Beirut, Lebanon.

Journal of Clinical Epidemiology
|November 22, 2025

View abstract on PubMed

Summary
This summary is machine-generated.

Guideline developers widely engage interest groups, primarily providers and patient representatives, in developing recommendations and peer review. However, engagement is concentrated in specific areas and with limited stakeholder types.

Keywords:
GIN-McMaster guideline development checklistHandbookInterest-holderPatient and public engagementPractice guidelinesStakeholder

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Area of Science:

  • Health policy
  • Clinical practice guidelines
  • Stakeholder engagement

Background:

  • Interest-holder engagement is crucial for the relevance and adoption of practice guidelines.
  • Interest-holders are groups with legitimate stakes in health issues, affecting or affected by decisions.
  • Guideline development organizations increasingly recognize the importance of diverse stakeholder input.

Purpose of the Study:

  • To describe the approaches used for interest-holder engagement in practice guideline development.
  • To analyze how guideline-producing organizations document stakeholder involvement in their guidance materials.

Main Methods:

  • A systematic review of guidance documents from guideline-producing organizations was conducted.
  • Data on interest-holder engagement was abstracted across 23 subtopics of the Guidelines International Network (GIN)-McMaster Guideline Development Checklist.

Main Results:

  • Nearly all (97%) organizations describe engaging at least one interest-holder group.
  • Engagement is highest in "developing recommendations" (96%) and "peer review" (81%).
  • Providers (95%) and patient representatives (64%) are the most frequently engaged groups, while engagement in "training" (2%) and "group processes" (3%) is minimal.

Conclusions:

  • Most guideline organizations engage interest holders, predominantly through panel membership.
  • Engagement is concentrated in specific guideline development stages and involves a limited range of stakeholder groups.
  • Opportunities exist to broaden and deepen interest-holder engagement across all guideline development phases.