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Correlates of Individual and Systemic Advocacy Activities Among Siblings of Autistic Individuals
Chak Li1, Meghan M Burke1, Catherine K Arnold1
1Chak Li and Meghan M. Burke, Vanderbilt University; and Catherine K. Arnold, University of Illinois at Chicago.
Abstract:
Extensive research has focused on parent advocacy, but the advocacy efforts of siblings of autistic individuals remain less studied. This study aims to identify the correlates of individual and systemic advocacy among siblings of autistic individuals. Using a national survey, 256 adult siblings of autistic individuals indicated their advocacy activities. Descriptive statistics and hierarchical regressions were used for analyses. Results indicated that, although siblings often engaged in both individual and systemic advocacy, they present as distinct constructs with varying correlates. Older siblings who engaged in future planning and/or were knowledgeable about disability policy were more likely to conduct individual advocacy. Systemic advocacy was greater among siblings more connected to the disability community and had reciprocal exchanges of tangible support.
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