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Published on: June 6, 2020
Advancing Inclusive Research in Intellectual and Developmental Disabilities: Building Community and Supports for
Karrie A Shogren1, Brad Linnenkamp1, Rebecca Townsend1
1Karrie A. Shogren, Brad Linnenkamp, Rebecca Townsend, Ben Edwards, Lindsay Rentschler, Ashley Taconet, Claire Stelter, Ryan Henley, Kaela Bright, Lisa Hildebrandt, Evan Dean, Roxanne Loyless, and Sean Swindler, Kansas University Center on Developmental Disabilities.
Abstract:
People with intellectual and developmental disabilities are often excluded from equitable inclusion in the development and execution of research. Despite increased advocacy for inclusive research over the last decade, the widespread use of such practices remains limited. There is a need for systemic change to foster the inclusion of people with intellectual and developmental disabilities in planning, conducting, and disseminating research. This paper describes actions taken by a research group to make system changes to empower and support people with intellectual and developmental disabilities to learn about and engage in research. It highlights ongoing work that is needed and possible ways to advance systemic change.
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