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Parenting With an Enduring Health Condition: Experiences, Support Needs and Service Delivery Preferences.

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Summary

Parents with enduring health conditions face significant challenges in parenting tasks, especially physical ones. They often lack adequate support services, highlighting a critical need for integrated systems to aid their parenting roles.

Keywords:
disabilityinstrumental activities of daily livingoccupationparentingsurvey design

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Area of Science:

  • Health Sciences
  • Sociology
  • Parenting Studies

Background:

  • Enduring health conditions significantly impact individuals' lives, yet their effects on parenting roles remain under-researched.
  • Understanding the experiences and support needs of parents with chronic illnesses is crucial for developing effective interventions.

Purpose of the Study:

  • To explore the lived experiences of parents in Ireland with enduring health conditions.
  • To identify their support needs and preferences regarding parenting roles.
  • To assess the impact of chronic illness on parenting capacity.

Main Methods:

  • A custom e-survey was developed and refined using cognitive interviewing (n=6).
  • Quantitative data were analyzed using descriptive statistics and group comparisons.
  • Qualitative data from open-ended responses were analyzed using interpretative content analysis.

Main Results:

  • 281 parents with enduring health conditions completed the survey.
  • Participants reported significant difficulties with parenting tasks, particularly those requiring physical exertion.
  • Limited access to formal services and unmet needs were commonly reported, leading to dissatisfaction with existing support.

Conclusions:

  • Enduring health conditions substantially affect parenting capacity and engagement in parenting roles.
  • There is a pressing need for integrated support systems tailored to parents with chronic illnesses.
  • Enhanced support is essential to enable these parents to effectively fulfill their parenting occupations and roles.