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Co-creating gender affirming survey questions: A participatory qualitative study
Jessica R Gorman1, Stephanie L Corey1, Scotty Kupsch2
1College of Health, Oregon State University, Corvallis, USA.
Patient Education and Counseling
|November 26, 2025
Summary
This study developed new, affirming survey questions for measuring gender in transgender and gender diverse (TGD) individuals. Community collaboration ensured respectful and inclusive data collection for research and clinical settings.
Area of Science:
- Sociology
- Gender Studies
- Health Research Methodology
Background:
- Research on transgender and gender diverse (TGD) populations is limited.
- Existing gender measurement tools may exclude marginalized groups.
- Developing inclusive measures is crucial for accurate representation.
Purpose of the Study:
- To collaborate with community advisors and participants to create affirming survey items for gender measurement.
- To address the lack of research and systematic exclusion in current gender measures.
Main Methods:
- Purposive sampling of 37 participants (9 cisgender, 28 TGD).
- Iterative data analysis involving individual interviews, focus groups, and Community Advisory Board (CAB) feedback.
- Co-creation of survey items and response options.
Main Results:
- Participant feedback highlighted the need for clear, resonant language and trust-building.
- Co-created questions and response options were developed.
- Introductory text emphasized confidentiality and voluntary disclosure.
Conclusions:
- New survey questions for gender and sex assigned at birth will be used in a population-based cohort study.
- Findings can inform gender assessment in clinical settings.
- Researchers and clinicians must prioritize safety, rapport, voluntariness, and confidentiality when collecting gender data.
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