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Informal Caregivers' Experiences of an Online Support Program: Qualitative Study Using an Abductive Approach Focusing
Hanna Allemann1, Ingela Thylén1,2, Frida Andréasson3
1Department of Health, Medicine and Caring Sciences, Linköping University, Linköping, Östergötland, Sweden.
Informal caregivers of heart failure patients need support. An online program co-designed with them showed promise, but implementation strategies are key for widespread adoption and effectiveness.
Area of Science:
- Digital health interventions
- Caregiver support
- Chronic condition management
Background:
- Informal caregivers play a vital role for individuals with chronic conditions like heart failure.
- Caregivers often face demanding situations and require tailored support.
- An online support program was co-designed to address caregiver needs and preferences.
Purpose of the Study:
- To explore informal caregivers' experiences with a co-designed online support program for heart failure.
- To identify facilitators and barriers to program engagement.
- To inform implementation strategies for scaling up the program's use.
Main Methods:
- Qualitative content analysis of interviews with 15 informal caregivers from a randomized controlled trial.
- Abductive approach to identify barriers, facilitators, and implementation strategies.
- Mapping findings onto the Digital Health Engagement Model (DIEGO).
Main Results:
- Caregiver experiences with the online support program were identified.
- Factors influencing engagement with online content were determined.
- Tailored implementation strategies, including outreach and adaptation, were formulated.
Conclusions:
- The Digital Health Engagement Model (DIEGO) effectively guided the identification of implementation strategies.
- Strategies emphasize active outreach, endorsements, and continuous adaptation for program success.
- DIEGO provides insights for implementing digital health tools in clinical practice and research.
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