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Exploring End-of-Life Perspectives in Structurally Vulnerable Populations: A Qualitative Focus Group Study.

Anouk Bérubé1, Sophie Dupéré1,2, Diane Tapp1,3,4

  • 1Faculty of Nursing, Laval University, Quebec City, QC, Canada.

Community Health Equity Research & Policy
|November 27, 2025
PubMed
Summary
This summary is machine-generated.

Structurally vulnerable populations need better access to palliative care and advance care planning information. Improving awareness and accessibility is crucial for end-of-life preparation and informed decision-making.

Keywords:
end-of-life carehealth educationhealth equityhealth promotionmedical aid in dyingpalliative caresocioeconomic factors

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Area of Science:

  • Healthcare Access
  • Palliative Care Research
  • Gerontology

Background:

  • Palliative care is vital but structurally vulnerable populations face access barriers.
  • Understanding beliefs, needs, and concerns regarding palliative care and advance care planning is essential for this demographic.

Purpose of the Study:

  • To explore the beliefs, needs, and concerns of structurally vulnerable populations concerning palliative care and advance care planning.
  • To identify barriers and facilitators to accessing palliative care and support for end-of-life care planning.

Main Methods:

  • Conducted two semi-structured focus groups in Quebec, Canada (May & August 2022).
  • Included participants (≥18 years, French-speaking) from partnered community organizations.
  • Analyzed data using thematic content analysis.

Main Results:

  • Fifteen participants (Caucasian, mostly women, born before 1960, retired) revealed misconceptions and low awareness of palliative care options.
  • Factors promoting awareness included experience with caregiving, access to a family physician, and legal professionals.
  • Participants urgently need more accessible information and improved access to palliative care and advance care planning services.

Conclusions:

  • Enhanced understanding of palliative care options empowers individuals and families for end-of-life decisions.
  • Structurally vulnerable populations require accessible information to facilitate end-of-life preparation.
  • This study advocates for equity-focused policies and interventions to improve access and planning for vulnerable groups.