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People with multiple sclerosis (MS) often hide work challenges, impacting job retention. Addressing these issues while maintaining self-concept is key for sustained employment.

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Area of Science:

  • Neuroscience
  • Sociology
  • Occupational Health

Background:

  • Multiple sclerosis (MS) often leads to employment challenges, even with mild disability.
  • The lived experiences of employed individuals with MS regarding work challenges are understudied.

Purpose of the Study:

  • To explore the work challenges faced by employed individuals with mild to moderate MS.
  • To identify factors enabling sustained employment for people with MS.

Main Methods:

  • Qualitative study using in-depth interviews with 26 employed people with MS.
  • Analysis employed systematic text condensation, guided by Goffman's theories.

Main Results:

  • Three themes emerged: unspoken work challenges, cumulative symptom impact, and self-perception at work.
  • Limited communication about challenges persisted even after disclosure; symptom interplay reduced work capacity.
  • Feeling capable in tasks was linked to sustained employment.

Conclusions:

  • People with MS may downplay work challenges to preserve self-concept and social roles.
  • Acknowledging and addressing mild MS symptoms and work challenges, while maintaining self-concept and workplace acceptance, can support job retention.