Related Experiment Video
Updated: Jan 10, 2026
11:35
The Multiple Sclerosis Performance Test MSPT: An iPad-Based Disability Assessment Tool
Published on: June 30, 2014
58.6K
Mild multiple sclerosis challenges shape work experiences, affect self-concept, and are often trivialized despite
Maria Grytvik Hartvedt1, Britt Normann1,2, Marianne Sivertsen1,2
1Faculty of Nursing and Health Sciences, Nord University, Bodø, Norway.
Frontiers in Rehabilitation Sciences
|November 28, 2025
Summary
People with multiple sclerosis (MS) often hide work challenges, impacting job retention. Addressing these issues while maintaining self-concept is key for sustained employment.
Area of Science:
- Neuroscience
- Sociology
- Occupational Health
Background:
- Multiple sclerosis (MS) often leads to employment challenges, even with mild disability.
- The lived experiences of employed individuals with MS regarding work challenges are understudied.
Purpose of the Study:
- To explore the work challenges faced by employed individuals with mild to moderate MS.
- To identify factors enabling sustained employment for people with MS.
Main Methods:
- Qualitative study using in-depth interviews with 26 employed people with MS.
- Analysis employed systematic text condensation, guided by Goffman's theories.
Main Results:
- Three themes emerged: unspoken work challenges, cumulative symptom impact, and self-perception at work.
- Limited communication about challenges persisted even after disclosure; symptom interplay reduced work capacity.
- Feeling capable in tasks was linked to sustained employment.
Conclusions:
- People with MS may downplay work challenges to preserve self-concept and social roles.
- Acknowledging and addressing mild MS symptoms and work challenges, while maintaining self-concept and workplace acceptance, can support job retention.
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