"I wanna just not go, because maybe I'm sad" - views on depression from the perspective of people with aphasia, their care partners, and speech-language pathologists
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View abstract on PubMed
Summary
This summary is machine-generated.Depression in people with aphasia is an embodied, fluctuating experience influenced by communication and social factors. Interventions should address the link between aphasia and depression, using non-verbal cues for screening.
Area Of Science
- Neurology
- Psychiatry
- Speech-Language Pathology
Background
- Individuals with aphasia post-stroke are often excluded from depression research due to communication challenges.
- Understanding depression experiences is crucial for effective management, as shown in non-aphasia populations.
Purpose Of The Study
- To qualitatively explore the lived experiences of depression in individuals with aphasia.
- To understand perspectives from people with aphasia, their care partners, and speech-language pathologists (SLPs).
Main Methods
- Conducted separate focus groups with people with aphasia (n=15), care partners (n=13), and SLPs (n=13).
- Utilized a semi-structured format to gather in-depth information on depression experiences.
- Employed reflexive thematic analysis for data interpretation.
Main Results
- Identified five key themes: the aphasia-depression cycle, depression's whole-person impact, symptom fluctuation, social participation's dual role, and communication discrepancies regarding feelings.
- Revealed that depression is experienced as embodied and fluctuating, significantly linked to communication abilities.
- Highlighted contextual influences of social participation on depression.
Conclusions
- Depression in aphasia is an embodied, fluctuating experience intertwined with communication and social contexts.
- Recommends depression screening tools incorporate non-verbal cues and symptom variability.
- Suggests interventions should target the bidirectional relationship between aphasia and depression.
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