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Not Just The Baby: Holding Parents In The Neonatal Surgical Journey.

Home
Not Just The Baby: Holding Parents In The Neonatal Surgical Journey.

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Not just the baby: Holding parents in the neonatal surgical journey.

H Wilkinson¹, M Hotton², K Damazer³

¹Oxford Institute of Clinical Psychology Training and Research, Isis Education Centre, Warneford Hospital, Headington, Oxford, UK; University of Oxford, Oxford, UK.

Journal of Pediatric Nursing

|December 4, 2025

View abstract on PubMed

Summary

This summary is machine-generated.

Parents need better support during their baby's neonatal surgical journey. Enhanced preparation, communication, and psychological care are crucial for parental well-being.

Keywords:

Neonatal care Parental wellbeing Psychosocial needs Qualitative

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Area of Science:

Neonatal care
Pediatric surgery
Parental well-being

Background:

Prenatal diagnosis of conditions requiring neonatal surgery causes significant parental stress.
Understanding parents' experiences within the neonatal surgical pathway is essential for improving care.

Purpose of the Study:

To explore parents' lived experiences of the neonatal surgical pathway.
To develop evidence-based recommendations for enhanced parental support.

Main Methods:

Qualitative study involving 24 parents via surveys and 9 via in-depth interviews.
Reflexive thematic analysis was employed to identify key themes.

Main Results:

Parents emphasized the need for thorough preparation, empathetic communication, and active involvement in their child's care.

Valuable support included parent-to-parent mentoring, dedicated spaces for emotional expression, meeting physical needs, and access to psychological support.

Conclusions:

The broader healthcare system's approach to supporting parents significantly impacts their well-being.
Recommendations span universal, targeted, and specialist support levels, including antenatal counseling, peer support, and psychological interventions.