Factors influencing caregiver burden during perioperative care for children with pediatric central nervous system tumors: an analysis of multidimensional burden and associated determinants
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View abstract on PubMed
Summary
This summary is machine-generated.Caregivers of children with central nervous system (CNS) tumors experience significant perioperative care burden, which increases before discharge. Addressing employment status, nutritional issues, and hospital stay length can help alleviate this burden.
Area Of Science
- Pediatric Oncology
- Neuro-oncology
- Caregiver Support
Background
- Central nervous system (CNS) tumors are a significant health concern in children.
- The perioperative period for pediatric CNS tumor patients presents unique challenges for caregivers.
- Understanding caregiver burden is crucial for developing effective support strategies.
Purpose Of The Study
- To investigate the care burden experienced by primary caregivers of children with CNS tumors during the perioperative period.
- To identify factors influencing caregiver burden in this population.
Main Methods
- A mixed-methods approach was used, combining quantitative data from the Zarit Burden Interview (ZBI-Chinese version) with qualitative data from semi-structured interviews.
- The study included 67 primary caregivers of perioperative children with CNS tumors.
- Data were collected at admission and before discharge.
Main Results
- Caregiver burden scores increased significantly from admission to before discharge (mean scores 29.57 vs. 33.90).
- Key factors influencing pre-discharge burden included postoperative nutritional disorders, caregiver employment status, and length of hospital stay.
- Qualitative themes revealed challenges in navigating the medical system, psychological distress, lack of knowledge, financial strain, and future uncertainty.
Conclusions
- Caregivers of children with CNS tumors face substantial perioperative burden.
- Interventions should focus on improving postoperative nutritional management, supporting caregiver employment, and optimizing hospital stay duration.
- Enhanced caregiver education, psychological support, and social security systems are recommended to mitigate burden.
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