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Self-Experienced Difficulties in Communicative Participation in Children With Speech, Language and Communication
Eline Alons1,2, Bianca Berndsen-van Swaaij3, Caroline Terwee4,5
1Research Centre Healthy and Sustainable Living, HU University of Applied Sciences Utrecht, Utrecht, the Netherlands.
Children with communication disorders identified 44 concepts detailing difficulties in communicative participation. These findings will inform the development of a patient-reported outcome measure (PROM) for speech and language therapy.
Area of Science:
- Speech and Language Therapy
- Pediatric Communication Disorders
- Patient-Reported Outcome Measures
Background:
- Communicative participation is a primary goal of speech and language therapy.
- A patient-reported outcome measure (PROM) is needed to assess children's communicative participation.
- Children's perspectives on communication challenges are crucial for developing effective PROMs.
Purpose of the Study:
- To identify aspects of self-reported communicative participation relevant to children with communication disorders.
- To explore children's own experiences of communication difficulties.
Main Methods:
- Semi-structured interviews and diaries were used with 13 children (ages 5-12) with speech disorders, DLDs, voice disorders, and/or hearing loss.
- Data analysis involved directed content analysis based on an existing theoretical framework.
- Children's recall and reflection abilities were also observed.
Main Results:
- 171 situations were discussed, yielding 44 concepts categorized into person, topic, pace, location, moment, and mode.
- Some children, particularly those under 8 with DLD, experienced difficulties recalling and reflecting on communicative participation.
- The identified concepts offer insights into children's self-perceived communication challenges.
Conclusions:
- The 44 concepts provide a foundation for developing a PROM for children's communicative participation.
- These concepts can be directly applied in clinical conversations with children.
- The study contributes to a better understanding of communicative participation from the child's perspective.
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