Susan G. Komen's ShareForCures: a patient-engaged, nationwide breast cancer research registry

ShareForCures is a newly launched and growing dataset, crowdsourced from participants, that comprises self-reported, clinical, and genomics data. The dataset seeks to advance breast cancer research by expanding patient participation in research and accelerating discoveries. It is designed to (1) provide opportunities for individuals who have or have had breast cancer to participate in research, (2) create a longitudinal cohort that represents the diversity of individuals diagnosed with breast cancer, and (3) facilitate collaboration among researchers from various backgrounds and institutions to improve breast cancer care and outcomes for all. ShareForCures is a user-friendly, direct-to-consumer, online platform that collects demographic, genetic, and clinical information from or on behalf of breast cancer research participants. All adults in the United States with a breast cancer diagnosis are eligible. As of September 30, 2025, 1327 participants had enrolled. The platform aims to enroll 2500 diverse participants by 2027, with a long-term goal of reaching 10 000 participants in the next decade. With ShareForCures, Susan G. Komen is engaging a diverse population of individuals with breast cancer, including persons from groups typically underrepresented in research, to drive discoveries that benefit everyone. With the first research projects already using the dataset, ShareForCures has the potential to become a unique national platform for generating insights and real-world data that will drive patient-centered research.