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  1. Home
  2. Multidisciplinary Management Of Duchenne Muscular Dystrophy From Childhood To Adulthood.
  1. Home
  2. Multidisciplinary Management Of Duchenne Muscular Dystrophy From Childhood To Adulthood.

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Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy
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Multidisciplinary management of Duchenne muscular dystrophy from childhood to adulthood.

Juliette Ropars1, Emmanuelle Salort-Campana2

  • 1Department of Pediatrics, CHU Brest, 29200 Brest, France; Neuromuscular center, 29200 Brest, France; Laboratoire du Traitement de l'Information Médicale, LaTIM INSERM UMR1101, 29200 Brest, France.

Archives De Pediatrie : Organe Officiel De La Societe Francaise De Pediatrie
|December 14, 2025

View abstract on PubMed

Summary
This summary is machine-generated.

Managing Duchenne muscular dystrophy (DMD) requires a lifelong, multidisciplinary approach. Tailored care across childhood, transition, and adulthood optimizes quality of life and outcomes for individuals with this progressive neuromuscular disorder.

Keywords:
Duchenne muscular dystrophyMultidisciplinary managementTransition

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Area of Science:

  • Neurology
  • Genetics
  • Rehabilitation Medicine

Background:

  • Duchenne muscular dystrophy (DMD) is a severe, progressive neuromuscular disorder causing muscle degeneration and multisystem complications.
  • Effective management necessitates a coordinated, multidisciplinary strategy focused on patient quality of life throughout their lifespan.
  • Early diagnosis and proactive interventions are crucial for optimizing outcomes in DMD patients.

Purpose of the Study:

  • To outline the principles of multidisciplinary care for Duchenne muscular dystrophy (DMD).
  • To emphasize tailored interventions across different life stages for DMD patients.
  • To address the challenges of care transition and ethical considerations in advanced DMD management.

Main Methods:

  • Review of current principles in multidisciplinary care for Duchenne muscular dystrophy.
  • Analysis of evolving patient needs from childhood through adulthood.
  • Examination of transition programs bridging pediatric and adult care systems.
  • Consideration of ethical aspects, including anticipatory directives.
  • Main Results:

    • DMD management requires distinct, coordinated approaches for pediatric, transitional, and adult phases.
    • Key interventions include physical therapy, respiratory and cardiac support, orthopedic care, and psychosocial support.
    • Effective transition programs are vital for continuity of care and integration into adult life.
    • Anticipatory planning and directives are essential for aligning care with patient preferences.

    Conclusions:

    • A lifelong, multidisciplinary approach is fundamental for improving quality of life and longevity in DMD.
    • Tailored medical, psychosocial, and rehabilitative strategies are critical at each life stage.
    • Addressing the complexities of care transition and ethical planning enhances patient outcomes and well-being.