Navigating Delirium Superimposed on Dementia: Family Care Partners' Experiences and Needs

Area of Science:

• Gerontology
• Dementia Care Research
• Family Caregiving Studies

Background:

• Delirium superimposed on dementia (DSD) presents unique challenges for family care partners (FCPs).
• Limited understanding exists regarding the specific needs and preferences of FCPs managing DSD.
• Effective support strategies are crucial for FCP well-being and care quality.

Purpose of the Study:

• To explore the lived experiences of FCPs caring for individuals with DSD.
• To identify FCPs' needs for education, support, and resources.
• To inform the development of targeted interventions for DSD caregivers.

Main Methods:

• Qualitative descriptive study design.
• Data collection through demographic surveys and semi-structured interviews with 16 FCPs.
• Thematic analysis to identify key patterns and themes in FCP experiences.

Main Results:

• Five emergent themes: Emotional Strain, Adaptive Challenges, Navigating Support Systems, Stabilizing Strategies, and Knowledge Gaps.
• FCPs experience significant emotional strain and adapt to daily shifts in DSD symptoms.
• Challenges include navigating support, communication, and a lack of knowledge on how best to assist.

Conclusions:

• FCPs require enhanced education and support to manage DSD effectively.
• Clinician-led training and accessible community resources are vital.
• Improving caregiver confidence and dyadic well-being is a key outcome.