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The Progressive Aphasia Communication Toolkit (PACT): A Strengths-Based Approach to Multidomain Evaluation for

Jeanne Gallée1,2, Jade Cartwright3, Maya L Henry4

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Medrxiv : the Preprint Server for Health Sciences
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PubMed
Summary

The Progressive Aphasia Communication Toolkit (PACT) offers a new way to assess communication strengths in people with primary progressive aphasia (PPA). This strengths-based tool is preferred by patients and caregivers over traditional methods.

Keywords:
person-centered careprimary progressive aphasiaspeech-language pathologystrengths-based approachtherapeutic assessment

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Area of Science:

  • Neurology
  • Speech and Language Pathology

Background:

  • Existing tools for assessing communication in primary progressive aphasia (PPA) are limited.
  • There is a need for ecologically-valid, strengths-based assessment instruments for PwPPA.

Purpose of the Study:

  • To describe the development of the Progressive Aphasia Communication Toolkit (PACT).
  • To create a strengths-based and ecologically-valid instrument for PwPPA.

Main Methods:

  • The study involved five experiments: two for instrument development and three for piloting.
  • Ninety-five participants contributed, including researchers, clinicians, individuals with PPA (PwPPA), and care partners.

Main Results:

  • The PACT was developed with four scales for quantitative and qualitative feedback.
  • The PACT was refined, digitized, and preferred by PwPPA and care partners over traditional evaluations.
  • Strong inter-rater agreement was demonstrated for general measurability (91%) and strength ratings (85%).

Conclusions:

  • The PACT provides a holistic profile of communication strengths for PwPPA.
  • The instrument can guide clinicians in setting functional therapeutic targets for PwPPA.