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Investigation into Deep Breathing through Measurement of Ventilatory Parameters and Observation of Breathing Patterns
Published on: September 16, 2019
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The experience of children using long-term non-invasive ventilation: a qualitative study
Deborah Olmstead1,2, Allison Carroll3,4, Jennifer Klein5
1Respiratory Medicine, Stollery Children's Hospital, Edmonton, AB, Canada.
Frontiers in Sleep
|December 22, 2025
Summary
Long-term non-invasive ventilation (LT-NIV) offers benefits but presents challenges for children and families. Pediatric-specific equipment and collaboration are key to optimizing its use and improving quality of life.
Area of Science:
- Pediatric respiratory care
- Medical technology
- Patient experience
Background:
- Long-term non-invasive ventilation (LT-NIV) is crucial for managing pediatric respiratory conditions.
- Optimizing LT-NIV use requires understanding user experiences.
- Current equipment may not fully meet the needs of pediatric users.
Purpose of the Study:
- To identify factors that optimize the use of long-term non-invasive ventilation (LT-NIV) in children.
- To explore the lived experiences of children using LT-NIV and their parents/guardians.
- To gather insights for improving LT-NIV therapy and equipment.
Main Methods:
- Qualitative framework analysis of focus group interviews with children (8-12 years) and parents/guardians.
- Participants used LT-NIV for at least 3 months.
- Thematic analysis of coded findings.
Main Results:
- Four themes emerged: the dual nature of LT-NIV (benefits/challenges), feelings of being different, equipment interface issues (mask, humidity), and the need for user-driven improvements.
- Children and parents highlighted emotional, social, and physical challenges.
- Significant impact of equipment design and function on tolerance and adherence was noted.
Conclusions:
- LT-NIV improves lives but requires commitment; pediatric-specific equipment is essential.
- Collaboration between healthcare providers, children, and families is vital for success.
- Future research and technology development should incorporate user experiences to enhance LT-NIV adherence and outcomes.
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