"Something is wrong!" A qualitative study of racial disparities in parental experiences of OSA detection in their child
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View abstract on PubMed
Summary
This summary is machine-generated.Black and White mothers have different experiences detecting obstructive sleep apnea (OSA) in their children, influenced by awareness, education, and healthcare interactions. These disparities highlight potential racial biases in pediatric sleep care.
Area Of Science
- Pediatric Sleep Medicine
- Health Disparities Research
- Qualitative Health Research
Background
- Obstructive sleep apnea (OSA) affects approximately 3% of American children.
- Black children exhibit a 2-4 times higher prevalence of OSA compared to White children.
- Parental experiences in OSA detection, diagnosis, and treatment, particularly racial differences, remain understudied.
Purpose Of The Study
- To explore and compare the experiences of Black and White mothers during the detection process of obstructive sleep apnea (OSA) in their children.
- To identify convergent and divergent themes in parental perceptions and feelings throughout the OSA detection journey.
- To shed light on potential racial disparities influencing the OSA detection pathway.
Main Methods
- Conducted 27 semi-structured interviews with mothers of children referred for polysomnography (PSG) to diagnose OSA.
- Employed a thematic descriptive analysis approach to identify and categorize parental experiences.
- Analyzed themes for convergence (shared experiences) and divergence (unique experiences) by race, examining prevalence differences.
Main Results
- Identified 21 themes across 5 categories detailing divergent and convergent experiences between Black and White mothers.
- Divergent themes unique to Black mothers included "It Takes a Village-Teacher," "Misplaced Blame," "Missing the Day/night Connection," "Trust in Provider," and "Snoring is Normal."
- A divergent theme unique to White mothers was "Dying in Ones Sleep"; convergent themes showed prevalence differences by race.
Conclusions
- Black and White mothers navigate distinct pathways in detecting and diagnosing pediatric sleep-disordered breathing.
- Factors such as awareness, education, patient-provider interactions, and healthcare system experiences significantly shape these pathways.
- Divergent themes, like "Misplaced Blame" among Black mothers, suggest the influence of racism and health disparities on the OSA detection process.
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