Technology and Dementia Preconference
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View abstract on PubMed
Summary
This summary is machine-generated.Patient and Public Involvement (PPI) was key to developing a patient-centred remote monitoring study for dementia and mild cognitive impairment. This approach ensured the study design met patient needs and preferences, improving feasibility and inclusion.
Area Of Science
- Neurology
- Gerontology
- Digital Health
Background
- Remote monitoring tools offer valuable data but face feasibility concerns in clinical settings.
- A patient-centred design is crucial for tool effectiveness and data quality in memory clinics.
- The study aimed to integrate Patient and Public Involvement (PPI) into developing a remote monitoring study for the Oxford Brain Health Clinic.
Purpose Of The Study
- To systematically integrate PPI in the development of a remote monitoring study.
- To ensure the study design is patient-centred, effective, and well-tolerated by memory clinic populations.
- To produce high-quality data through a user-informed approach.
Main Methods
- Engaged people with dementia, mild cognitive impairment, relatives, and dementia research volunteers.
- Utilized workshops, surveys, user-testing, co-production with a lay member, and PPI panel consultations.
- Incorporated feedback on relevance of outcome measures, choice in assessments, and digital task improvements.
Main Results
- PPI significantly shaped the research, emphasizing relevant outcome measures (activity, memory, relationships, care needs) and patient choice.
- Improvements were suggested for digital tasks, including device compatibility and analogue alternatives.
- The resulting study design maximizes patient/relative choice and collects data on high-priority outcomes, deemed acceptable and feasible by PPI consultants.
Conclusions
- Integrating PPI created a patient-centred remote monitoring study aligned with patient and relative needs.
- PPI is invaluable for digital assessment studies in clinical populations, challenging assumptions and improving outcomes.
- This approach enhances study acceptability and ultimately promotes greater inclusion.
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