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Related Concept Videos

Primary Healthcare Services01:30

Primary Healthcare Services

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Primary care promotes wellness and prevents disease. This care includes health promotion, education, protection (such as immunizations), early disease screening, and environmental considerations. Settings providing this type of healthcare include physician offices, public health clinics, school nursing, and community health nursing.
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Health promotion allows a person to control the determinants of health, resulting in an improved health status. It enhances the quality of life and reduces premature deaths. Health promotion and illness prevention programs help people make beneficial choices to reduce the risk of disease and disabilities. There are three health promotion and illness prevention levels: primary, secondary, and tertiary prevention.
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Preventive Healthcare Services01:30

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Preventive healthcare services keep people healthy via frequent check-ups, screening, and counseling. They primarily aid in disease prevention rather than treating an acute or chronic illness. Preventive treatment also keeps individuals productive and energetic, allowing them to work well into their retirement years. Examples of preventive care services include:
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Principles of Disease Surveillance01:26

Principles of Disease Surveillance

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Disease surveillance is the systematic collection, analysis, and interpretation of health data essential to the planning, implementation, and evaluation of public health practice. This process integrates data dissemination to entities responsible for preventing and controlling disease, injury, and disability. Surveillance systems provide crucial information for action, helping public health authorities make informed decisions to manage and prevent outbreaks, ensure public safety, optimize...
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Healthcare Agencies II01:17

Healthcare Agencies II

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There are various healthcare agencies in the United States—some of which are managed by religious institutions and others by different government branches.
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Methods Of Healthcare Delivery System01:26

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At the different levels of the healthcare system, we see varying methods of healthcare used. These methods include managed care systems, case management, and primary healthcare.
Managed Care System:
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Determining Soil-transmitted Helminth Infection Status and Physical Fitness of School-aged Children
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Public Health.

Casper de Boer1,2, Hanneke F M Rhodius- Meester1,3,4, Sophie M van der Landen1,2

  • 1Amsterdam Neuroscience, Neurodegeneration, Amsterdam, Netherlands.

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Summary
This summary is machine-generated.

The ABOARD Cohort is a new Dutch infrastructure collecting patient data to study Alzheimer's disease (AD) trajectories. It aims to improve prediction models and support healthcare innovations for better patient outcomes.

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Area of Science:

  • Neuroscience
  • Gerontology
  • Public Health

Background:

  • Alzheimer's disease (AD) develops over decades, yet current data collection often misses the full disease course.
  • Existing prediction models for AD may not reflect real-world patient experiences.
  • A national data infrastructure is needed to capture the complete AD trajectory and improve patient-relevant outcomes.

Purpose of the Study:

  • To establish the ABOARD Cohort, a Dutch national data infrastructure for studying Alzheimer's disease (AD).
  • To collect patient-reported outcome measures (PROMs) and medical data to understand the AD disease trajectory.
  • To link collected data with existing registries and serve as a platform for healthcare innovation.

Main Methods:

  • The ABOARD Cohort utilizes a participant-centered approach, collecting PROMs and minimal case report forms (CRFs) online.
  • Participants at risk of or with AD, along with their study partners, are recruited directly.
  • Data linkage with existing registries is facilitated, and stakeholder input guides project development.

Main Results:

  • The ABOARD Cohort enrolled 10,275 participants and 1,383 partners by October 2024.
  • Over 90% of participants consented to data linkage with existing registries.
  • Participants reporting memory problems showed worse outcomes on PROMs for mental health, cognition, quality of life, and lifestyle.

Conclusions:

  • The ABOARD Cohort provides a national infrastructure for studying AD trajectories with participant involvement.
  • This infrastructure can serve as a registry to advance AD research and provide real-world data for evaluating new therapies.
  • The project aims to improve understanding and management of AD by focusing on patient-reported outcomes and comprehensive data linkage.