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Related Concept Videos

Primary Healthcare Services01:30

Primary Healthcare Services

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Primary care promotes wellness and prevents disease. This care includes health promotion, education, protection (such as immunizations), early disease screening, and environmental considerations. Settings providing this type of healthcare include physician offices, public health clinics, school nursing, and community health nursing.
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Health promotion allows a person to control the determinants of health, resulting in an improved health status. It enhances the quality of life and reduces premature deaths. Health promotion and illness prevention programs help people make beneficial choices to reduce the risk of disease and disabilities. There are three health promotion and illness prevention levels: primary, secondary, and tertiary prevention.
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Preventive Healthcare Services01:30

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Preventive healthcare services keep people healthy via frequent check-ups, screening, and counseling. They primarily aid in disease prevention rather than treating an acute or chronic illness. Preventive treatment also keeps individuals productive and energetic, allowing them to work well into their retirement years. Examples of preventive care services include:
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Disease surveillance is the systematic collection, analysis, and interpretation of health data essential to the planning, implementation, and evaluation of public health practice. This process integrates data dissemination to entities responsible for preventing and controlling disease, injury, and disability. Surveillance systems provide crucial information for action, helping public health authorities make informed decisions to manage and prevent outbreaks, ensure public safety, optimize...
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Healthcare Agencies II01:17

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There are various healthcare agencies in the United States—some of which are managed by religious institutions and others by different government branches.
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At the different levels of the healthcare system, we see varying methods of healthcare used. These methods include managed care systems, case management, and primary healthcare.
Managed Care System:
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Public Health.

Van Ta Park1,2,3, Janice Y Tsoh2,3,4, Bora Nam1

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Summary
This summary is machine-generated.

The CARE registry enhances research for Asian American, Native Hawaiian, and Pacific Islander (AANHPI) populations, addressing underrepresentation in aging and dementia studies. It successfully recruits diverse AANHPI participants through culturally tailored methods, improving research inclusion.

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Area of Science:

  • Gerontology and Alzheimer's Disease Research
  • Health Disparities and Health Equity
  • Community-Based Participatory Research

Background:

  • Asian American, Native Hawaiian, and Pacific Islander (AANHPI) populations are significantly underrepresented in aging and Alzheimer's disease and related dementias (ADRD) research.
  • This underrepresentation limits the generalizability of findings and the development of culturally relevant interventions for these communities.
  • Existing research often fails to employ community-centered approaches, hindering trust and engagement with AANHPI stakeholders.

Purpose of the Study:

  • To establish the Collaborative Approach for AANHPI Research and Education (CARE) registry to address the underrepresentation of AANHPIs in aging, ADRD, and caregiving research.
  • To implement community-based participatory research principles to foster trust and partnerships between academic and community stakeholders.
  • To develop and evaluate culturally tailored engagement strategies for the recruitment, retention, and inclusion of AANHPI participants in research.

Main Methods:

  • The CARE registry utilizes community-based participatory research principles, guided by community and academic partnerships.
  • Participants enroll via online, in-person, or phone surveys available in multiple languages, collecting socio-demographic, health, and caregiving information.
  • The registry actively supports researchers by providing recruitment referrals for studies focused on AANHPI populations, particularly in aging and ADRD.

Main Results:

  • As of January 13, 2025, 10,485 AANHPI adults have enrolled, with a mean age of 54.3 years, including 34.8% older adults (≥65).
  • Approximately 14% reported ADRD symptoms, and 40.4% of caregivers cared for someone with ADRD. Most participants (83.1%) were foreign-born, with 50% having limited English proficiency.
  • CARE has facilitated over 14,900 referrals to 51 studies since January 2021, with significant recruitment requests for aging and ADRD studies. National expansion is underway.

Conclusions:

  • The CARE registry demonstrates a successful community-engaged model for increasing AANHPI participation in aging and ADRD research.
  • Culturally tailored recruitment and retention strategies are effective in engaging diverse AANHPI populations, including those with limited English proficiency.
  • CARE's expansion aims to further enhance research inclusivity and advance scientific understanding of aging and dementia within AANHPI communities.