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Related Experiment Video

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Determining Soil-transmitted Helminth Infection Status and Physical Fitness of School-aged Children
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Public Health.

Belen Custodio1, Rosa Montesinos1,2, José Carlos Huilca3

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Summary
This summary is machine-generated.

Establishing a Community Advisory Board (CAB) in Peru adapted the Patient Advisor Toolkit for dementia research. This structured approach enhanced community engagement and collaboration in study design.

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Area of Science:

  • Neuroscience
  • Public Health
  • Social Sciences

Background:

  • Community Advisory Boards (CABs) are formal groups that enhance community engagement in research.
  • Establishing CABs is crucial for involving community members in research design and implementation.

Purpose of the Study:

  • To illustrate the process of establishing a CAB in Lima, Peru.
  • To adapt the Patient Advisor Toolkit for use in dementia research in a new cultural context.
  • To involve the community in designing dissemination and recruitment strategies for dementia research.

Main Methods:

  • A retrospective study describing the creation of a CAB in Lima, Peru.
  • Adaptation and translation of the Patient Advisor Toolkit.
  • Facilitator training including material review and role-play exercises.
  • CAB member training sessions covering CAB functions, rules, responsibilities, and expectations.

Main Results:

  • The CAB comprised six members (4 women, 2 men) from diverse backgrounds, including caregivers and individuals without prior research experience.
  • Training was divided into two sessions for better comprehension.
  • CAB members established rules, responsibilities, and expectations, and participated in a meeting simulation for feedback.

Conclusions:

  • Adapting and translating the Patient Advisor Toolkit provided a structured method for CAB formation.
  • This model facilitates effective collaboration between community members and researchers.
  • The approach can serve as a reference for integrating community perspectives into dementia research in similar settings.