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Public Health
Phyllis Timpo1, Rhiana Schafer2, Hanna Clem3
1University of Chicago, Chicago, IL, USA.
Alzheimer'S & Dementia : the Journal of the Alzheimer'S Association
|December 23, 2025
Summary
Community engaged research (CER) at the Healthy Aging & Alzheimer's Research Care (HAARC) Center improved representation in studies for aging and dementia. These strategies successfully connected with diverse populations, enhancing recruitment for Alzheimer's disease and related dementias (ADRD) research.
Area of Science:
- Gerontology and Neuroscience
- Public Health and Community Engagement
- Clinical Research and Recruitment Strategies
Background:
- The Healthy Aging & Alzheimer's Research Care (HAARC) Center, established in 2023, focuses on aging, Alzheimer's disease, and related dementias (ADRD), emphasizing resilience and health span.
- Community engaged research (CER) is central to the HAARC Center's mission to ensure representative perspectives in ADRD research.
Purpose of the Study:
- To outline the community engaged research (CER) and recruitment strategies implemented by the HAARC Center over an 18-month period.
- To detail the methods used to foster community partnerships and enhance participant engagement in aging and dementia research.
Main Methods:
- Deployed multiple CER efforts including hiring diverse staff, building community partnerships, integrating feedback, hosting events, and maintaining ambassador boards.
- Developed culturally responsive programming and utilized social media for education, supporting four active HAARC Center studies.
- Leveraged a research registry and REDCap for participant engagement, data management, and accountability.
Main Results:
- Participated in 126 community events, reaching over 1,500 individuals and connecting with 70 potential participants (80% identifying as Black) aged 50-92.
- Established strong partnerships with 9 community, 14 institutional, and 7 medical organizations, with 80% of programming targeting underrepresented groups.
- Implemented initiatives such as dementia presentations, Dementia Friendly Communities, "Ask the Doctor" tables, and memory kit distribution, with the HAARC Center serving as the sole ADNI Diversity Hub in Chicago.
Conclusions:
- Fostering partnerships with local organizations, advocacy groups, caregivers, and community members grounds research in lived experiences.
- CER initiatives at the HAARC Center aim to improve research representation, driving equitable advancements in aging and dementia care.
- The HAARC Center reinforces its commitment to inclusivity and advancing the science of recruitment for aging and dementia research.
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