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Dementia Care Research and Psychosocial Factors
Xueping Ma1, Sussman Tamara2, Sarah Donnelly3
1McGill University, Montreal-west, QC, Canada.
Alzheimer'S & Dementia : the Journal of the Alzheimer'S Association
|December 25, 2025
Summary
Social workers face challenges supporting autonomy for persons with dementia during capacity assessments. Addressing social inequities and systemic barriers is crucial for promoting inclusion and empowerment.
Area of Science:
- Gerontology
- Social Work
- Bioethics
Background:
- Global legislation mandates support for autonomy in persons with dementia.
- Assessing decisional capacity presents complex challenges for healthcare professionals.
Purpose of the Study:
- To explore social workers' experiences with psychosocial capacity assessments for persons with dementia.
- To identify strategies used to support decisional inclusion, autonomy, and empowerment.
Main Methods:
- Constructivist grounded theory (CGT) approach.
- Five in-depth interviews with social workers in Montreal, Canada (long-term and home care settings).
- Thematic analysis of transcribed interviews.
Main Results:
- Social inequities (ageism, ableism, racism) and lack of support erode autonomy.
- Building trust, engaging communities, and addressing social issues are key for inclusion.
- Organizational support is often lacking to address these critical issues.
Conclusions:
- Supporting persons with dementia involves navigating social, organizational, and interpersonal challenges.
- Relational strategies can be effective but face barriers from budgets and priorities.
- Systemic conditions significantly impact social workers' ability to promote autonomy and inclusion.
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