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Dementia Care Research and Psychosocial Factors
1Georgia State University, Atlanta, GA, USA.
Alzheimer'S & Dementia : the Journal of the Alzheimer'S Association
|December 25, 2025
Summary
Care partners of individuals with frontotemporal dementia (FTD) face significant stress when their loved ones interact with the criminal legal system. Increased awareness and education are crucial for navigating these challenges.
Area of Science:
- Neuroscience
- Criminology
- Social Science
Background:
- Frontotemporal dementia (FTD) can manifest behavioral symptoms that lead to interactions with the criminal legal system.
- Individuals with FTD are at increased risk for arrest and incarceration due to their symptoms.
Purpose of the Study:
- To explore the experiences of care partners for individuals with FTD who have had contact with the criminal legal system.
- To identify challenges and protective factors for care partners navigating the legal system.
Main Methods:
- Conducted semi-structured interviews with care partners of individuals with FTD in the United States.
- Performed thematic coding on transcribed interviews to identify emergent themes.
Main Results:
- Care partners experience stress and anxiety regarding their loved one's legal system involvement.
- Dwindling social support and a lack of criminal legal system awareness are significant barriers.
- Education and advocacy emerge as crucial protective factors.
Conclusions:
- Care partners of individuals with FTD interacting with the criminal legal system have diverse experiences but share common barriers.
- A lack of awareness and education about dementia within the criminal legal system is a primary challenge.
- Care partners leverage education, social capital, and advocacy to overcome these obstacles.
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