Dementia Care Research and Psychosocial Factors

Area of Science:

• Gerontology
• Ophthalmology
• Public Health

Background:

• Individuals with dementia are at higher risk of preventable vision loss, particularly in long-term care settings.
• Barriers to accessing timely eye care and treatment for people with dementia hinder their independence and participation in activities.
• There is a critical need for integrated, person-centred eye care models within dementia care.

Purpose of the Study:

• To develop a dementia-friendly eyecare pathway for integration into long-term care models.
• To identify and address barriers to accessing and sustaining dementia-friendly eye care services.
• To improve visual health outcomes and quality of life for people living with dementia.

Main Methods:

• A mixed-methods approach including observational case studies, behavioural systems mapping, and care plan audits.
• Documentary analysis of facility and national dementia care policies, alongside a global literature review.
• Co-design methodology involving expert reference groups, advisory groups (including people with dementia and carers), and public consultations.

Main Results:

• An implementation-ready dementia-friendly eyecare pathway was developed.
• An accompanying implementation plan, grounded in a recognized implementation framework, was created.
• The process identified key actors, relationships, and documentation practices related to eye care in long-term care.

Conclusions:

• Co-design and implementation frameworks are crucial for addressing barriers to eye care pathway adoption and sustainability.
• Ensuring regular eye tests and timely eye care for all individuals with dementia can significantly improve their ability to 'see well, to live well'.