'Unalloyed, Uncomplicated Joy': A Qualitative Study to Understand Dementia Care Partners' Experiences of

Eden Rose Champagne1

  • 1Department of Recreation and Leisure Studies, Aging, Health and Well-being, University of Waterloo, Waterloo, ON, Canada.

Dementia (London, England)
|December 27, 2025
PubMed

Care partners who have a loved one living with dementia are at risk for psychological distress and burden. As a result, a variety of programs to support dementia care partners have been designed, but dance/movement therapy (DMT) remains underexplored for care partner well-being. As such, the purpose of this study was to understand the experience of a novel DMT intervention designed to promote resilience among carers. Semi-structured interviews were conducted with 9 female care partners who took part in a pilot study. Reflective journals and interviews were transcribed and then thematically analyzed with an inductive approach. Three themes emerged pertaining to participants' experiences of the DMT program. Holistic engagement theme emphasized the powerful impact which the body-mind approach of had for carers, above and beyond verbal therapy. Liberation theme highlighted how beneficial movement was to enable carers to feel "free" to express themselves. Connection to others theme demonstrated the impact of movement to foster supportive relationships between carers. Participants suggested that future iterations of this program should have more sessions with time to process DMT activities in-depth. Overall, results suggest that DMT is a promising approach to support care partner well-being holistically, by providing creative opportunities for them to move, process, and connect. These findings can be built upon in future creative-arts therapy interventions for care partners.

Related Concept Videos

Dementia01:30

Dementia

Dementia is a collective term for cognitive disorders primarily affecting memory, thinking, and reasoning. It is not a specific disease but a syndrome, with Alzheimer's disease being the most common cause, accounting for approximately 60-80% of cases. Other types include vascular dementia, Lewy body dementia, and frontotemporal dementia. Dementia affects millions worldwide, particularly older adults, though it is not a normal part of aging.
The progression of dementia is generally gradual....
482
Restorative Care01:19

Restorative Care

Restorative care is provided once a patient has been discharged from a healthcare facility and requires additional services. The additional services include home care, rehabilitation programs, and extended care. Restorative care centers help the patient regain their previous level of functioning or acquire a new level of functioning due to the incapacitating effects of a disease or a disability. It aims to assist patients in enhancing their quality of life by encouraging independence,...
2.3K
Modeling in Therapy01:26

Modeling in Therapy

Modeling, a key technique in therapy, uses observational learning to help clients acquire and practice new skills by watching therapists demonstrate desired behaviors. This approach, rooted in Albert Bandura's concept of vicarious learning, plays a significant role in therapeutic interventions for various psychological conditions, including social anxiety, ADHD, and depression.
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
360
Documentation in Long-Term and Home Healthcare Setting01:29

Documentation in Long-Term and Home Healthcare Setting

Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
1.4K