A Phenomenological Study of the Lived Illness Experience of Adolescents with Chronic Glomerular Disease

Aim: This qualitative study explored the fundamental characteristics of the illness experiences among adolescents living with chronic glomerular disease. Methods: A phenomenological research approach was employed. In-depth interviews were conducted between May and December 2015 with 13 adolescents aged 14-19 years who were diagnosed with chronic glomerular conditions requiring long-term monitoring and management. Results: Seven thematic clusters emerged from the data: "appearance and worsening of kidney disease symptoms," "restrictions in daily living," "unstable self-control," "changes in relationships with friends," "sensitivity about a decrease in achievements due to disease," "efforts to maintain a normal daily life," and "psychological, physical, and social strengthening." The core experience was characterized as "overcoming limitations due to chronic disease and demonstrating resilient growth." Conclusions: This study offers valuable insights into how adolescents interpret, cope with, and adapt to chronic renal conditions in their daily lives. The findings underscore the need for developmentally appropriate, interdisciplinary care strategies that include structured psychosocial and educational support to promote resilience and improve quality of life in this population.