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Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
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Tracking Chronic Diseases via Mobile Health Applications: Which User Experience Aspects Are Key?

Anouk S Huberts1, Preston Long2, Ann-Kristin Porth3

  • 1Department of Quality and Patientcare, Erasmus University Medical Center, 3015 GD Rotterdam, The Netherlands.

Healthcare (Basel, Switzerland)
|December 30, 2025
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Summary

A unified yet customizable digital platform for patient-reported outcomes (PROs) can improve engagement and data quality across diverse chronic conditions in Europe. Key user experience (UX) factors include personalization, data sharing, and privacy.

Keywords:
PROschronic diseasedigital healthuser experience

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Area of Science:

  • Digital Health
  • Patient Outcomes
  • User Experience Research

Background:

  • Limited understanding of user experience (UX) factors hinders sustained patient engagement with digital patient-reported outcomes (PROs) tools.
  • Existing research is often disease- or country-specific, creating fragmentation and increasing development costs for European digital health frameworks.
  • This study addresses the gap by identifying shared UX determinants for scalable, cross-disease PRO collection.

Purpose of the Study:

  • To identify and analyze key UX factors supporting the adoption and sustained use of PRO collection tools.
  • To inform the development of European digital health frameworks for chronic disease management.

Main Methods:

  • Focus groups conducted with patients across four chronic disease areas (cancer, IBD, diabetes) in six European countries.
  • Purposive sampling through national patient advisory boards ensured participant diversity.
  • Modified thematic analysis, guided by the UX Honeycomb model and inductive themes, identified cross-disease UX determinants.

Main Results:

  • Six core UX factors emerged: technology compatibility, care team communication, personalization, data sharing, educational materials, and data protection.
  • Customizability is crucial, with disease-specific needs identified (e.g., glucose monitoring for T1D, flare detection for IBD, side-effect comparison for cancer).
  • Shared needs suggest a unified app is preferable, potentially easing self-management for patients with comorbidities.

Conclusions:

  • A unified yet customizable PRO platform can enhance patient engagement and data quality across diverse chronic conditions.
  • Features like seamless data transfer, personalization, feedback, and robust privacy measures foster trust and long-term adoption.
  • Customization is essential to meet individual patient and disease-specific needs for optimal tool utilization.